Haematology - LUHFT-wide
What is haemtrack?
Haemtrack is an online system developed by the providers of the National Haemophilia Database to record your home treatment. It allows you to record when you treat yourself, the batch numbers, the number of units infused, and the type of treatment used, whether it is for a bleed or prophylaxis. Haemtrack will only collect and record this specific information.
Why do I need to use haemtrack?
This system is compulsory to all patients having clotting factor treatment delivered directly to their home. You will have to agree to complete accurate details about your home treatment on this database.
Having this information up to date is essential.
- The information gathered is very helpful for your consultant when you see them in clinic, to show how your treatment is working. It can show whether there is any pattern to any bleeding and whether they need to change your treatment.
- The information is needed by specialist health commissioners. Clotting factor is a high cost drug in the UK and we have to provide the commissioners with information that helps to plan future care and shows how much clotting factor we are using. This information also compares what we do with other Haemophilia Centres.
- Failure to keep records up to date could lead to the cancellation of home delivery and you would need to collect treatment from the haemophilia centre.
- Being considered for any new therapies, drugs, or clinical trials will often be determined by whether haemtrack is regularly updated. So failure to maintain records means possibly missing great opportunities.
How does haemtrack work?
You will need a computer, tablet, or smart phone to fill in haemtrack. It works like a diary. You will have access to a monthly calendar where you can add details of your treatment, including the date and time, the product, and the reason for the treatment.
Please register with haemtrack at https:/
If you are unable to register with haemtrack or have any difficulties, let the Haemophilia Centre know. If you do not have access to the internet, we can supply you with home treatment forms to be completed and o be completed and returned to us.
Is haemtrack secure?
Yes, the system is secure. You will be given a unique login and can choose your own password. The only people who can access your data at the haemophilia centre are the data manager, your consultant, your nurses, and the physiotherapist looking after you.
What if I have any problems with haemtrack?
You can contact the haemophilia centre directly and speak to our data manager on: Email: clinichaematologyadmin
Non urgent and routine enquiries: 0151 706 3397.
Alternatively, you can contact the haemtrack team directly on:
Email: support
Telephone: 0161 277 7917
Feedback
Your feedback is important to us and helps us influence care in the future.
Following your discharge from hospital or attendance at your outpatient appointment you will receive a text asking if you would recommend our service to others. Please take the time to text back, you will not be charged for the text and can opt out at any point. Your co-operation is greatly appreciated.
Further information
If you have any further questions, please ask a member of our medical / nursing team.
Please contact the Haemophilia Team
Monday - Friday 9am - 5pm
Telephone number: 0151 706 3397
Text phone number: 18001 0151 706 3397
Useful Websites
The Haemophilia Society: https:/
World Federation of Haemophilia: www.wfh.org.
Author: Haematology Liverpool
Review Date: June 2029
PI 3060 V2