TTP is a rare blood condition with potentially life-threatening complications, and patients often face long-term psychological impacts including trauma, anxiety, and cognitive difficulties.
This new guideline sets out clear, practical recommendations for embedding psychological support within TTP care pathways, from diagnosis through to relapse and recovery, as well as guidance on family involvement, multidisciplinary team working, and service development.
“We’re incredibly proud that our service, which is based in the Royal Liverpool University Hospital, has played a central role in developing this first-of-its-kind national guidance,” says Dr Latham.
“It reflects a growing recognition that psychological support is not a luxury but a vital part of care, and that with the right structures in place, we can meaningfully integrate psychology into medical teams to improve outcomes for patients with rare and complex conditions.”
The new guidelines are available on the BSH Supportive Care Special Interest Group page.