If you would like to refer a patient into our service, please email your referral letter.
Email: lwft.clingen@nhs.net
Your referral must include:
- The patient's name, date of birth, NHS number and postcode
- For cancer referrals, please include any histology report(s)
- Any other background or further information about the patient is always useful.
Please contact us with any questions or for advice if required, you can find our referral criteria here.
Urgent referrals
Urgent referrals can be accepted just as a written email as long as all patient information (NHS number, name, date of birth, postcode, telephone number) is included in the email, but all routine referrals should include a formal letter (PDF/word format).
We aim to respond to urgent referrals in three to five working days.
Examples of urgent referrals include:
- Ongoing pregnancy
- Recent diagnosis of cancer where a genetic test result may impact on clinical decisions.
All new referrals are triaged by a member of the clinical team. If, after reading our referral criteria, you are unsure whether to refer please contact us.
Rare Disease Referral Criteria
Please provide as much clinical and family history information as possible in your referral in order for us to triage the patient appropriately. For further information please see our Rare Disease Referral Criteria.
Cancer Referral Criteria
Please provide a copy of the histology report(s) and as much clinical and family history information as possible in your referral in order for us to triage the patient appropriately. For further information please see our Cancer Referral Criteria.
Please note that meeting referral criteria does not necessarily mean your patient will receive a genetic test.
Our dedicated genomics strategy team provides a number of roles both internally and externally:
- Organise (internal and external) monthly education sessions for our team to contribute to CPD.
- Support the mainstreaming pathways and incorporation of Genomic Medicine within other specialities.
- Support Genomic Medicine upskilling of HCPs.
- Teaching requests can be received via lwft.
clingen @nhs.net
We have regular involvement with the genomic medicine service alliance liaising with the education leads there.
They can be contacted directly at: North West Genomic Medicine Service Alliance
Further resources for Health Care Professionals
Genomics in the NHS – NHS England
The Genomics in the NHS programme is a collection of elearning courses developed by NHS educational teams to support and educate healthcare professionals about genomic medicine and the benefit it will bring to patient care.
Their foundation courses have been developed for healthcare professionals with limited exposure to genomics in their role. Whereas the specialised courses are designed for healthcare professionals working in the NHS, who support patients through genomic testing.
Genomics England – NHS England
The NHS Genomic Medicine Service (NHS GMS) is the arm of the NHS working to enable the NHS to harness the power of genomic technology and science to improve the health of our population. You can also find further information about the 100,000 Genomes Project and the Newborn Genomes Programme.
Genomics Education Programme – NHS Health Education England
Health Education England’s Genomics Education Programme exists to deliver and advise on learning and development opportunities that prepare current and future NHS professionals to make the best use of genomics in their practice. They have excellent resources available for free online in many different formats including:
- Bitesize genomics
- Clinical resources
- Core concepts
- Image library
- Online courses
- Podcasts
- Taught courses
- Teaching resources
- Videos:
- Including a series called series, Let’s Talk About… Genomic Testing, which has been developed to cover the key considerations when discussing genomic testing with patients.
- Also, short videos explaining different inheritance patterns (e.g. autosomal dominant inheritance and autosomal recessive inheritance).
- Genomics glossary.
GeNotes – NHS Health Education England
In the Clinic - Focused on the point of patient care, these short scenarios look at when to consider genomic testing and what you need to do. Including the specialities of Fetal and Women’s Health, Oncology and Paediatrics.
The Knowledge Hub - Extend your learning with this encyclopaedia of resources, designed to support your understanding of genomics in medicine.
The Knowledge Hub articles are organised into different themes, including core concepts, conditions, genes, therapies, technologies and genomics in action. The articles feature a range of supporting multimedia, including animations, films, interviews and infographics.
Scientist Training Programme – training to become a Genomic Counsellor
You can enter a career in Genomic Counselling through the NHS Scientist Training Programme (STP). The STP is a funded three-year programme of work-based learning, supported by a University accredited master's degree. You can find further information about the STP from the National School of Healthcare Science.
At the moment individuals trained in this area work under the professional title of Genetic Counsellors.
STP Perspectives was set up in August 2017 to promote healthcare science and create a platform for trainee healthcare scientists to share their experiences. You can find their blog on their website, STP Perspectives.
Mainstream Genomic Testing for inherited breast cancer (R208)
Mainstream Genomic Testing for Inherited Breast Cancer (R208) Merseyside and Cheshire
Overview
- Welcome to R208 mainstream e-learning package [presentation]- Claire Brooks, Genetic Counsellor
- Mainstreaming introduction [presentation] – Dr Joanna Cliff, Consultant Oncologist
- Introduction to genetic testing [presentation] – Anna Whaite, Genetic Counsellor
- Assessing eligibility for testing [presentation] – Anna Whaite, Genetic Counsellor
- Consent conversation [presentation] – Claire Brooks, Genetic Counsellor
- The test: purpose and process [presentation] – Claire Brooks, Genetic Counsellor
- The test: results [presentation] – Eleanor Taylor, Genetic Counsellor
- Local process and logistics [presentation] – Dr Joanna Cliff, Consultant Oncologist.
Forms
- Test Request Forms - "NW GLH Genomic Testing Request Form – Rare Disease"
- Genetic testing after a diagnosis of breast cancer; Patient information and consent form.
Useful Documents and Resources
- National Genomic Test Directory, Testing Criteria for Rare and Inherited Disease - Rare and inherited disease eligibility criteria (R208 - Inherited breast cancer and ovarian cancer)
- Cheshire & Merseyside Protocol for Genomic Testing of Patients with a Diagnosis of Breast Cancer [Breast Cancer Genetic Testing Pathway]
- The Manchester Scoring System (MSS) calculates the probability of pathogenic variants in the BRCA1 and BRCA2 genes in families suspected of having hereditary breast and ovarian cancer. Manchester Scoring System Information Sheet
- Cancer Genetics Group (CGG) - UKCGG Leaflets and Guidelines
- Frequently Asked Questions.
Mainstream Genomic Testing for inherited prostate cancer (R430)
- Welcome to prostate mainstreaming e-leaning package [presentation]- Tanya Davis, Genetic Counsellor
- Mainstreaming introduction [presentation]- Dr Shaun Tolan, Consultant Oncologist
- Introduction to genetic testing [presentation]– Anna Whaite, Genetic Counsellor
- Assessing eligibility for testing part 1 [presentation] and part 2 [presentation] – Sarah Maguire, Genetic Counsellor
- Consent conversation [presentation]– Claire Brooks, Genetic Counsellor
- The test: purpose and process [presentation] – Tanya Davis, Genetic Counsellor
- The test: results [presentation] – Katie Nickson, Genetic Counsellor
- Local process and logistics [presentation] – Dr Shaun Tolan, Consultant Oncologist.
Forms
- Test Request Forms - "NW GLH Genomic Testing Request Form – Rare Disease"
- Genetic testing after a diagnosis of prostate cancer; Patient information and consent form
- Tumour testing request form
Useful documents and resources
- National Genomic Test Directory, Testing Criteria for Rare and Inherited Disease - Rare and inherited disease eligibility criteria (R430 - Inherited prostate cancer)
- The Manchester Scoring System (MSS) Manchester Scoring System Information Sheet
- Somatic tumour testing [flowchart]
- Cancer Genetics Group (CGG) - UKCGG Leaflets and Guidelines
- Frequently Asked Questions.
Mainstream Genomic Testing for Inherited Gynaecological Cancers (R207 and R210)
Useful documents and resources
- Genetic testing for Gynaecological Cancers
- Genomic testing consent form
- Genetic testing request form